Title: Implementation and utilisation of disease registries in primary care
Authors: Clare Liddy; William Hogg; Grant Russell
Addresses: C.T. Lamont Primary Health Care Research Centre, Bruyère Research Institute, 43 Bruyère St, Annex E, Ottawa, ON, K1N 5C8, Canada ' C.T. Lamont Primary Health Care Research Centre, Bruyère Research Institute, 43 Bruyère St, Annex E, Ottawa, ON, K1N 5C8, Canada ' Southern Academic Primary Care Research Unit, Monash University, 314B Thomas St., Dandenong Victoria, 3175, Australia
Abstract: Disease registries can improve outcomes for patients living with chronic disease. We evaluated the feasibility of implementing a cardiovascular disease registry in two Ontario primary care practices (one with paper-based medical records, one with electronic medical records). Outreach facilitators supported the implementation of the web-based registry. We used a case study approach incorporating qualitative evaluation methods (facilitator narratives and interviews with physicians, nurses, practice administrative staff, and software developers). Both practices indicated that their expectations were not met by the software. Several themes emerged regarding implementation: presence of a practice champion, practice characteristics, IT use and support, communication style, and availability of resources throughout the registry's implementation and use. The complexities and challenges associated with the adoption of new technology in primary care should not be underestimated. It is important to both design registries specific to primary care and tailor them to the needs and expectations of individual practices.
Keywords: disease registry; primary care; chronic diseases; cardiovascular disease; implementation; clinical information systems; technology adoption; practice facilitation; healthcare technology; heart disease.
International Journal of Healthcare Technology and Management, 2014 Vol.14 No.4, pp.239 - 253
Accepted: 31 May 2014
Published online: 07 Feb 2015 *