Title: A study of e-discussion within a domain of uncertainty: the case of Tourette's Syndrome

Authors: Daniel Lorence, Karl Yaeger

Addresses: The Center for Technology Assessment, 114 Henderson HHD, Pennsylvania State University, University Park, PA 16802, USA. ' University of Pittsburgh School of Medicine, Pittsburgh, PA 15261, USA

Abstract: The growing popularity of the internet has made it easier and faster to find health information on rare and poorly understood disease topics. Much of this information is valuable, though the internet also allows the rapid and widespread distribution of false and misleading information, especially through peer-based networks. Providers frequently advise that it is important for health consumers to carefully consider the source of lay information and to discuss the clinical information they find with their health care provider. Beyond clinical indicators and standards, however, there exist few evaluative frameworks for assessing health information, especially within peer-to-peer networks. Employing a grounded theoretical approach, analysis of online, domain-specific interaction examined in this study demonstrates the decision making influences of ||virtual support groups|| and the related emergence of ||cybertherapy|| as a peer-based tool for healthcare consumers.

Keywords: chat rooms; discussion boards; domains of uncertainty; hierarchy; internet; Tourette|s; health information; internet; peer-to-peer networks; P2P networks; online interaction; decision making; healthcare consumers; e-discussion; virtual support groups; cybertherapy; information reliability.

DOI: 10.1504/IJHTM.2008.016844

International Journal of Healthcare Technology and Management, 2008 Vol.9 No.1, pp.1 - 18

Published online: 25 Jan 2008 *

Full-text access for editors Full-text access for subscribers Purchase this article Comment on this article